Update:Today was the Walk for PKD here in Austin. We've missed it that last few years so I wasn't really even planning to drive all the way to Cedar Park to do this walk. I had already sent in a donation at the first of the month and then Liz mentioned during the week that she had signed us up for the walk...
So, on Thursday night I decided that since we are walking, I better get a DONATION PAGE up so we can at least get some of our friends and relations involved too. I get the page up and Liz donates to it while I am still editing it, so it doesn't show her kick in... I am getting to old and senile and rushed to do this it seems.
So as we get to the walk today we notice there are lots of new people and some we have seen before. Talked to a woman (organizer) from Boston who received her transplant 15 years ago after being on peritoneal for 5 years.
A north Austin man who has PKD throughout his whole family talked about how he adjusted to his mother having PKD and being on dialysis, then his brothers and sisters growing up with it, and his own experiences with dialysis and now home dialysis. It was pretty large and integrated group today: I told Liz on the way home that I always appreciate her dragging me to events that I don't want to go to and then am happy I went to. We drove the slow way home, down Lime Creek road to Volente and up around L. Travis to Lakeway and back on into town. (If "my Cheryl" reads this, we thought about you guys on our drive and hope you're having a good weekend.)
Any how it is now up on FB and here and any donations you wish to make can be attached to this event til June they told us. Anything helps. "Twenty is plenty." "Just sen ten." "Let us know yer alive by pitching in five."
Here is me in my favorite educational PKD t-shirt.
Jack & Liz's PKD Donation Page