- Jack & Liz miss their 7:30 am Saturday Lab appointment at S. Austin Hospital (OUR FAULT CLEARLY)
- As we were told, Liz called the Transplant Team because we missed the appointment: leaving a message for Bernadette and Kim (on call) and was told by the operator that they wouldn't call anyone unless it is an emergency. We waited around for a call back and figured it must not be that big a deal... and we predicted we'd get a call bright and early Monday morning.
- Bernadette calls this morning and talks to Liz and tells her they should have called us back Saturday and if this happens in the future, we should call THEM back in 30 minutes and bug them. Also, that our appointment was supposed to be for Friday, but later changed to Saturday at our clinic meeting. She says to go over there right now and she'll FAX the orders, but we should also take the order we have just in case.
- We rushed over and found out we had to register again at the hospital. We ask, "Will this happen every time, twice a week?" ...and the registrar says "Oh yes that is the procedure". We shared with her that the last time we were told we only had to register once, and this registrar just smiled and shook her head. Also, the last registrar registered us in about 10 minutes, since the Lab is being paid out of Liz's insurance. This registrar asked a ton more questions, saying they were part of the Medicare requirements. We replied that the lab was covered under the insurance, and she replied, "doesn't matter, we have to get all of this info every time. Sorry." So, instead of 10 minutes this whole process took about 30 minutes...
- ... which put us 15 minutes past my meds time at 8:00 a.m. Liz reminded me I HAVE to get blood work B4 I take the meds anyway, so today I'll have to be late. My brain is going nuts by this time.... "I MUST TAKE MEDS NOW! MUST NOT BE LATE! ARGGGGGH" it is yelling inside my head, not improving my disposition. Liz makes apologies for my 61- year-old-couldn't-care-less what people think of my grouchiness.
- We rush over to the Express Lab and Peggy is there and she is so nice it helps me chill out a little. Takes all the blood needed and wishes me a good day. "Do you need a urine sample?" "Not this time." "OH. Well, can I have one of those little pee bottles... I have to go and need to know... how much I pee for my data entry." And of course, keeping with today's comedy of errors, the little bottle doesn't have milliliters marked on it so I have to take the sample home with me... you can guess the rest.
- We rush home where I gobble graham crackers crazily and pop my meds at 9:00 am... an hour late (is that reportable to Bernadette?) and we figure that means we take tonight's at 9, right? The I do my BP and Temp late....
2:00 PM: I receive and email back from Bernadette and she says: 1) Take meds tonight at 8:30 pm, and 2) She has emailed the Supervisor in registration to see what the problem is.
Switching Gears: About my new diet... since coming home I have tried to stick around the edges of a Heart Healthy Diet So, for the time being I am celebrating by eating small portions of all the foods I have missed while being on dialysis: as follows,
Jack's Famous Spaghetti Sauce~~~~~Cheerios with Bananas~~~~~Guacamole & Chips
Pistachio Nuts~~~~~~~~~~~~~~~~~~~~Raisin Bran~~~~~~~~~~~~~~~Oranges
Red Potatoes~~~~~~~~~~~~~~~~~~~~~Baked Potatoes~~~~~~~~~~~Enchiladas
Frijoles & Boracho Beans~~~~~~~~~~Nuts of Any Sort~~~~~~~~~~~Quesadillas
Grilled Cheese & Chile Sandwich~~~Nachos~~~~~~~~~~~~~~~~~~~Tomatoes
Whole Grain Rye Bread~~~~~~~~~~~~Milk~~~~~~~~~~~~~~~~~~~~~~Broccoli
From the perspective of a Dialysis Person, this list is like the Devil's Curse... and yet now, just one week PT (post transplant) all those little Devil guys on my shoulder like in the cartoon have become angel guys. And the angel guys whispering "No, No, No, Musn't Touch!!" have changed shoulders and their tune... now they say "Remember your heart... don't overdo it." I like this message much better, cause the first one is always the voice of my mother... Ycch. It is really an amazing thing, brain wise. I almost feel guilty eating what I want, after those years of forgoing what I want.
To those of you readers out there who are still on dialysis and on the 'waiting list', just think about how it will be when the renal diet tethers are cut? Imagine how you will run around like a kid in a candy store... and just imagine how you will enjoy those foods you remember. Yes, they do taste even BETTER than you recall! You will be so happy! And yet... you will have new dietary requirements which you might not agree with either. For me, the new "No No's" are as follows:
< 1.1 C coffee a day~~~~~Limit red meat~~~~~~~~~~~~No chocolate
Cut Sweets drastically~~~~2-3 Egg Yolks per week~~~~Limit fats severely
Low fat sour cream~~~~~~~Low fat cream cheese~~~~~One cup of coffee!
Here's a little cheer I wrote to celebrate my dietary changes:
no more "No potass-i-um"
milkshakes, nuts, and na-chos
yummy, yum, yum, yum, yum
Note: Call from Bernadette to Liz at night. Bernadette reports that today's Labs looked like last week's... and that is GOOD!